Registry


http://www.pemphigus.org/wordpress/registry/


The International Pemphigus and Pemphigoid Foundation have a Pemphigus & Pemphigoid Registry!


A registry is a collection of data used for research or comparative study. That’s what everyone is hoping for!

The more data collected, the better the information for researchers, the sooner they can find better treatments, earlier diagnosis, and one day — A CURE!! The Pemphigus-Pemphigoid Registry is designed to help the medical and research communities understand illness trends, treatment outcomes, disease burden, and some important demographic information about patient(s) age and gender.

It takes about 15 minutes of your time to answer some simple treatment, medication, and lifestyle questions.


You will need to know
Your current prescription medication
How long you have been taking the medicine
You past prescription medication history and the reasons why you stopped taking it

Thank you!


PEM Friends