PEM Friends on facebook February 2012
We are now on facebook! Join us there. Click the icon. 
October 2011
PEM Friends is now listed on the NHS Choices web site, this is the sister site to NHS Direct and is where the patient support groups are given. We hope it will enable patients to find us more easily.
Flu Jabs October 2011
(essential for those with compromised immune systems)
Read the information here
PEM Friends New Patron August 2011
Carolyn Blain, who established and ran PEM Friends, has accepted our invitation to become our new Patron, in recognition of the work she has done in helping so many of us. She has raised awareness of pemphigus and pemphigoid, not just in the UK, and has been at the forefront of patient support.
Carolyn is reassured that the “position” is entirely honorary!
Further details about Carolyn’s work can be found on our web site (see below) or http://www.pemphigus.org/wordpress/2011/06/pem-friends-founds-steps-down/
Thank You, Carolyn, PEM Friends Founder! April 2011
On behalf of all the PEM Friends in the UK, and further afield. In fact, our community extends beyond us patients to highly respected medical practitioners and many others. We want to pay tribute here to the amazing work of Carolyn Blain, founder of PEM Friends.
The aim of PEM Friends is to offer support through friendship and the group has done so much more for all of us. Her vital work has provided encouragement, support and guidance which she has extended to each and every one of us. Her dedication cannot be underestimated. Never taking no for an answer and working passionately on our behalf with the leading professionals, she always made people take notice and has put pemphigus and pemphigoid firmly on the health agenda. Carolyn has given so much of her time to support us, whether it was a PEM Friends lunch, one of the very special weekends at her home, an e-mail, a call, or so much more.
Carolyn, you be must so proud of what you have achieved. A huge thank you for the love and support you have given us. We couldn’t have got through those times without you.
An ambition realised despite and in spite of Pemphigus Vulgaris by Mike Holman
Read Mike’s article here
HAROLD PINTER January 2009
It was with great sadness that I learned of the recent death of Harold Pinter, one of the world’s leading playwrights, who was also a highly respected actor in the UK and latterly, a poet too.
After learning that Harold Pinter had Pemphigus Vulgaris, and prompted by some on the IPPF’s discussion group, I wrote to him.
It was a very carefully worded letter, knowing he must have been accustomed to getting many requests for help in different ways. I explained that we’d never want money from him, but just the honour of having him as The Patron of PEM Friends (UK).
He replied immediately – by email, agreeing to become our Patron. His email was short and to the point, and that has been the extent of our communications. What a great man to have agreed so readily.
His passing is such a loss to us all. Carolyn Blain
Sun Advice February 2008
For advice about precautions in the sun click the link