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Welcome to PEM Friends.

who we are

 

PEM Friends is a patient support group for people with pemphigus and pemphigoid, based in the UK

We are dedicated to providing support to anyone living with pemphigus or pemphigoid; including patients, family member and  friends who care about and care for them.

 

PEM Friends offers support to those in the UK and beyond, so if you have pemphigus or pemphigoid, or if you know someone who does, then PEM Friends is for you.

 

This is the place to share personal stories, pose questions, and ask for and receive support and friendship. Remember, we've all been through what you're going through - so who better to chat with about your physical and emotional well-being.

PEM Friends, an independent non-profit group, was established by our patron, Carolyn Blain, and is run by patients, for patients and their carers.

 

 

what we do

 

PEM Friends aims to:

 

• Provide support through friendship to those living with pemphigus and pemphigoid.

 

• Provide practical resources.

 

• Raise awareness of the needs of pemphigus and pemphigoid patients, helping to support everyone living with these   diseases.

 

• Work in partnership with the International Pemphigus and Pemphigoid Foundation, and to contribute to developments   internationally.

 

• Support research and innovation in the search for a more effective treatments and care.

 

Thanks to the caring support of its members, the medical community and the IPPF, PEM Friends is here to help patients and care givers alike.

 

Do remember to look under 'Resources' as there's advice about which foods will aggrevate the condition of one's mouth and which foods should be avoided altogether.

 

We are affiliated to The International Pemphigus & Pemphigoid Foundation

 

FEBRUARY 2014

We are invited to participate in a TV programme scheduled for later this year focussing on Pemphigus and Pemphigoid.

New Medical Television Programme

Looking for People with Pemphigus and Pemphigoid

Optomen Television, the BAFTA award-winning producers of Mary Portas: Queen of Shops, Kevin McCloud’s Man Made Home and Heston Blumenthal’s Feast is producing a brand new TV medical series for the Discovery Network and we need your help.  

In this series, we’ll be exploring a variety of health conditions in the hope that we can raise awareness on them. We’re looking for people with Pemphigus and Pemphigoid to take part in the programme to discuss their condition and to explain to others what it is like to live with it on a daily basis. By doing this,we’re hoping to raise general awareness on the condition, its symptoms and the types of treatment/care that is currently available.

We’ll also be working with a number of specialists throughout this series and, for those who take part in the programme, we can offer a free (off-screen) consultation with one of them. So perhaps you’d like a second opinion or advice on the types of treatments/care that is available to you?

For a no obligation, friendly and confidential chat with one of the team email healthshow@optomen.com or call 0203 227 5993 leaving your name, age and telephone number

(ALL APPLICANTS MUST BE 18 OR OVER)

Please Note: We will use and store the personal details contained in your email and any further response in accordance with the Data Protection Act 1998, for the purposes of producing the Programme.  

 

 

 

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